Finding a cure for cystic fibrosis

Cystic Fibrosis Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF). Cystic Fibrosis Canada is an internationally-recognized leader in CF research, innovation, and clinical care. We invest more funding in life-saving cystic fibrosis research and care than any other non-governmental agency in Canada.

Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. There are more than 4,000 Canadians living with CF. One in 25 Canadians is a CF carrier, with one defective version of the gene responsible for this life-altering disease. Many people are not aware that they are carriers. CF is a multi-system disease that mainly affects the lungs and the digestive system. Most deaths related to cystic fibrosis are due to lung disease. Of the Canadians with cystic fibrosis who died in 2013, half were under 35 years old. In 2013, the predicted median age of survival for Canadians with cystic fibrosis was 50.9 years of age. A person with cystic fibrosis spends the equivalent of more than four months of full-time work doing life-sustaining treatments every year.

 Investing in the best research has led to outstanding progress in the fight against cystic fibrosis. Today 50 percent of Canadians with cystic fibrosis are expected to live into their early 50s and beyond. In 2015/2016, Cystic Fibrosis Canada is funding more than $5.2 million in leading-edge research, supporting 46 research projects, 24 fellowship and studentship training awards, two national core facilities, and targeted research programs and partnerships aimed at advancing CF knowledge and achieving excellence in the quality of care for CF patients. We funded the research team that discovered the gene responsible for cystic fibrosis and continue to play a leading role in the worldwide race to develop new treatments and a cure for this disease. We also funded the clinicians that revolutionized diets for people with cystic fibrosis, resulting in longer lives and a better quality of life.

Cystic Fibrosis Canada